Or any ailment that stops you from sleeping?
How does sleep affect it and what medication, if any, do you take?
I recommend it vey highly. It has supported me in my journey towards improvment and wellnesss admirably.
Go to the site http://www.cfidsselfhelp.org/ and look at the blue box on the left hand side. I paid with my visa card.
It is an online course, and has free back up and support courses forever after you do the first course.
ME/CFS is a chronic problem and the ongoing support has been really important to me.
Let me know how you get on.
Thanks Suella, I will follow this up. My instinct is to maximise what I can achieve with Sleepio first, best wishes Kate
Sleep is the first thing I was told by the NHS clinic in Derby to improve. I used a CD player to keep me in bed and either entertained or put to sleep. The Prof's downloads are very helpful here.
Best of Luck!
Thanks, Suella, for the link. It was helpful!,
Hi, to everyone. New to Sleepio and this forum. I was diagnosed with Fibro in March.
And yes, extreme cold and extreme heat kill me! The cold makes the pain worse and heat exhausts me.
I also have arthritis and my doctor suspects something autoimmune may be going on. On first glance, this thread looks like it may be helpful I've already overhauled my diet and found a lot of food allergies/intolerance that have been adding to my insomnia issues. I have been wheat and dairy free for about a year which has been a big help.
Since developing FM I am never sleepy and tend to keep moving to lessen the pain. Does anyone also experience this ?
Janice, I am sorry. You have been “through the ringer” physically. I am at that place too. I have a cervical surgery scheduled for next month. I am at the point (pain) that I just want my neck fixed so the pain will go away. But, I am afraid because I had lumbar surgery last year and my lower back is worse than before the surgery. I decide to join the Y and see if water arobics help at all. Living with pain makes it very difficult to relax and get the sleep needed. Hang in there Janice.
My son was in an auto-motorcycle accident in 1976 when he was six years old. As a result he became a non verbal, blind, quadriplegic. I took care of him for 30 years before he passed away in 2006. Caring for him was a work of love. His brain damage left him a perpetual six year old. Which, was delightful in many ways. Always smiling and laughing despite constant seizures and respiratory illnesses. When he was alive I had chronic sadness and then when he passed I went into a deep depression.I have tried antidepressants but they just make me gain weight.In fact Lyrica had the opposite effect on me and gave me insomnia. Cymbalta worked for a time but I gained 30 pounds so I weaned myself off off and have lost 20 pounds. (Weaning off should be done with a doctors knowledge) My fibromylgia was diagnosed in 1982 and at that time not all doctors thought it was even a valid condition.First sign of arthritis was in 1998 with my hands. Now its everywhere. I also have restless legs and am so thankful for Requip. Actually Requip did help that aspect of my sleep. Anyone with restless legs knows what I am talking about. I have had a knee replacement, two surgeries to replace joints in my right foot. Rotator cuff surgery. Three bladder surgeries and last year my back surgery. I am facing two more surgeries. My neck and a revision of my lower back. This year I was diagnosed with sleep apena. Its quite funny to see my husband and myself in bed with matching cpap machines. Getting used to having a mask on my face has been a real challenge. Pain pills have been an issue also. I have now been regulated to a pain clinic. Since all of the recent deaths involving Vicoden and Percocet doctors have become very hesitant to prescribe Opiates .In fact, the clinic where I go will not prescribe any Opiates. I take one 2mg Dilaudid in the morning. I can't take it in the evening. It has a stimulating effect on me. But, it is nice not to have all the pain all the time. I am going to join the Y and start exercising as soon as I can with the upcoming surgeries.I am rambling on and apologize for the length of this post.I am hopeful Sleepio will improve my sleeping and am going to give it my all. Thank you Isaelaine3
I have chronic pancreatitis (that sometimes becomes acute) due to a congenital issue I am working on recovering (from a lot that dealt with it recently) and managing the pain. I have a lot ahead of me with this bout (and managing my chronic condition) but right now one of the things I also have to deal with is pain management and sleep. It affects sleep and also not enough sleep drains what little energy I have and makes it tougher to get done what I must each day and can lead to more pain…not a good cycle. Any one here go through pain and sleep issues? How do you get through it and sleep well? What if you wake up from it?
I have chronic migraines as well and used to get them daily but now it's just about once weekly unless I have rebound migraines that get me stuck in a medication induced cycle.
I have been getting back into meditation. Breathing techniques and visual imagery. Focusing on a thought and simply acknowledging it as just that and letting it pass. I tried yoga but with physical therapy it took too much out of my energy with the week (I needed break days in between), so maybe I will start later, or just continue breathing techniques.
Please let me know how you get through your day and nights if you can, it would be of a lot of help. Take care everyone :-).
I have fibromyalgia, CFS, restless legs, and a host of other medical issues, some of which doctors can't figure out. They have run out of tests to do! I am hoping my UP Jawbone bracelet will give me good info to help see what is really happening in my sleep. but don't think I can afford to pay for Sleepio (I am on disability and doing the 7 day free trial right now). I have seen many doctors and done extensive research already and don't know what Sleepio can do for me that I'm not already doing. I follow all the good sleep hygiene “rules” and have dramatically changed my diet to help with my health. I have wasted money on books that end up telling me no more than what I already know. This is a great forum and I love the chats! But money is tight. Can anyone give me insight about what Sleepio can do for me given the efforts and changes I have already made? Any advice would be appreciated!
Hello! Janice with the purple screws!!! Just happened to read your post as I have a friend with fibro..
All I want to say is Many Blessings to you for being such a wonderful, positive, loving person.
God be with you. Lolita.
Interested to read your comments, especially those on your response to low and high temperatures and also the improvements you've had since removing possible allergens. I was diagnosed with FM a year ago, and bad weather is certainly bad news for me: pain in hands and feet especially. There doesn't seem to be anything that can be done about this, and I'm just having to get used to being a human barometer! If you know of anything that helps, please do let me know.
With the exception of aubergines, which someone said could cause problems with FM (unproven in my case), I haven't yet tried removing any foods from my diet as my doctor said it would be very difficult to be certain that, for example, wheat was implicated. How easy did you find to remove wheat from your diet, and do you feel you can be sure that this had a positive effect?
All good wishes.
Preaching to the choir on this one.
Fibro, arthritis and autoimmune.
If you struggle with a restless mind try lavender oil and clary sage oil on your pillow or a handkerchief next to it. Not fool proof, does help settle your mind though.
Wow. Yes. I have fibromyalgia, osteoarthritis, insomnia and sleep apnea. My CPAP numbers always come back great so it“s not the sleep apnea causing me to be exhausted all the time. My provider at my sleep center suggests I just take a nap because from her end everything look good. It's got to be the fibromyalgia that causes the tiredness. I take 400 mg of Trazadone for the insomnia. That was just upped from 300 mg since I was awake for up to two hours after the medication.
I have osteoarthritis and ankylosing spondylitis and the pain sometimes wakes me up in the middle of the night. I take a low dose amitryipline and it really helps with the pain.
unfortunately Janice I have to wear a purple uniform and it's my favourite colour oh no…....
Hi I have a benign tumour that is attached to the outside of my spinal cord and spinal nerve root. I have some arthritis to the surrounding vertebra also. Night time pain is my main symptom and I take gabapentin, amitriptyline and tramadol. I find that i get in to a viscous circle of poor sleep due to pain, which leads to anxiety that makes it even harder to sleep. I am more prone to stress and anxiety due to living with chronic pain – again this leads to insomnia. I often lie in on my days off so I can catch up on sleep so my sleep routine gets disturbed. The worse the sleep the worse i cope with the pain.
I sleep on my side. I roll over quite often because i have pain in booth shoulders. I also have sleep apnea, so i can not sleep on my back. I have a machine, but i can not use it. The mask makes me feel like i am suffocating.
I know exactly how you feel. I can't tolerate HEAT OR COLD AT ALL. I need to move around other other wise the pain is awful.
just diagnosed yesterday with fb . been tired ever since I could remember from childhood. I nap often. does not matter how long I sleep or don't sleep. I always feel the same when I do get up , tired no energy. part of my problem is hot flashes , restlessness ,especially my legs .over past couple of yrs. I have to be able to move them often at night .cant explains the feeling that urges me to have to do this. and seems like something on me hurts daily that effects me being able to get a good night sleep. I have been sensitive since I was a kid to heat and cold and just about every yr. ask to have my thyroid check since hypothyroid is very common in the females in my family. but every yr. comes back fine. I noticed this year I had a issue with swelling to my ankles as well as a red, itchy ,burning soar rash to my lower calf/ ankle are that would show up when very hot and humid out . it last for a few days. I may also may have a form of arthritis . just had 20 cc of fluid drained off one knee. and waiting results sonogram di not show any breaks or tears to the bone or tendon .dr .want to see what is causing it . seemed concerned .ordered 6 test for anything that would cause inflammation . so I am asking if this seem atypical for fm? also what diet is best to follow ? foods to avoid ? .