Sleepio members living with bipolar, and other mood, disorders

This is a general discussion about how living with bipolar disorder affects our sleep adversely. It will hopefully be an outlet where those who have bipolar disorder will feel less alone with this particular challenge as they study the Sleepio course. This thread's goal? To show that Sleepio students can have bipolar disorder and have better sleep; something absolutely critical to living well with this mood disorder. (There will be no medical advice given.)

Posted 20 Jun 2019 at 1:23 PM
  • 8 comments
  • 2 helped

Comments

  • Sleepio Member

    • 3 comments
    • 4 helped
    Graduate

    Hi everyone! I was diagnosed with postpartum bipolar disorder in 2007. PPBD is childbirth-triggered bipolar and my sleep has been terrible ever since then! I do recall what it was to experience a great night's sleep but it's a verrrrry distant memory.

    I just started doing the Sleepio program and I'm grateful for its existence. However, like many others, I feel dejected about my insomnia. I have a feeling my 2 bipolar medications may contribute to insomnia, but I won't stop taking them. (It's a long story…I'll spare you the details!)

    I'd love to connect with others who understand the challenges of living with a mood disorder that affects our sleep in a unique way. Hope you'll take a moment to say hello!

  • Sleepio Member

    • 1 comments
    • 0 helped
    Session 4

    Thanks for sharing your experience, Dyanelydia. You are not alone! Although (as a dude diagnosed as bipolar in the mid-1970s) I haven’t struggled with postpartum depression, I DO identify with your frustration in running into the miasma of ignorance among the “healthy” population about our perpetual nightmare. For centuries this disorder was called by its Latin name, MELANCHOLIA. Everybody during that more-enlightened period knew it was a life-threatening disease and regarded its sufferers with awe & compassion. Then some probably well-meaning New Sumpsimus substituted the term “clinical depression” for MELACHOLIA, which trivialized this Stygian nightmare state. “I broke a fingernail. I’m so depressed!” IMHO, nobody who has not lived with this condition in her/his own body & life for at least one decade is in the same solar system—or even galaxy—as those of us who inhabit this horror’s torture chamber.

    There are even some creative advantages to MELANCHOLIA. Robert Schumann <https://www.bing.com/videos/search?q=Robert+Schumann&&view=detail&mid=77A34F7AB0035006C99777A34F7AB0035006C997&&FORM=VDRVRV> eventually was imprisoned in an insane asylum and barred from visits from his wife (Clara, a brilliant composer & concert pianist in her own right), their children, and their loyal friend & baby-sitter, Johannes Brahms <https://www.bing.com/videos/search?q=Robert+Schumann&&view=detail&mid=91D8E79ED8594DA2A82391D8E79ED8594DA2A823&&FORM=VDRVRV>. Today we’re justly appalled at this insane theory inflicted by mental health professionals in the early 1800s. (Robert’s autopsy revealed a growing brain tumor, NOT the rumored syphilis.) And Clara? <https://www.bing.com/videos/search?q=Robert+Schumann&&view=detail&mid=0279411BAA59D6F2F6580279411BAA59D6F2F658&&FORM=VDRVRV>. Want more? <https://www.bing.com/videos/search?q=Robert+Schumann&&view=detail&mid=BC57868C571D680162A5BC57868C571D680162A5&rvsmid=0279411BAA59D6F2F6580279411BAA59D6F2F658&FORM=VDQVAP>.

    I was hypomanic—full of energy & inventiveness and needing only a couple of hours of sleep per night—for about 1.75 years in the mid-1970s, and then mildly manic for about 3 months before 6 friends died within a 10-month period, half of them by suicide. This gatling-gun burst of bereavements plunged me into unipolar depression from which I’ve never recovered. Five consecutive M.D. specialists progressively Rxed about 20 antidepressant drugs, not one of which helped in the slightest. Negative side effects from some snake oil required a 2nd drug to manage the baleful symptoms of the primary drug, which was worthless anyway. Since then I’ve been helped by talk therapy, music, faith, humor, and a strong survival instinct. I hope Sleepio will help me put a bridle on my runaway sleep disorder and that you find help from our shared torment as well, Dyanelydia.

  • Sleepio Member

    • 3 comments
    • 3 helped
    Graduate

    Hi everyone. I can identify with what you both are saying. Although sleep restriction and sleep hygiene have helped me, I still have cyclical periods where my sleep becomes dreadful. It doesn't matter what I take before bed or how perfect my practices are, there are just periods of time when I will have a stretch of terrible sleep and all I can do is wait it out. Sleepio has helped me to handle this a little better. It has made me realize that I will survive and get through it and that I will eventually sleep again. Thank you for sharing.

  • Sleepio Member

    • 2 comments
    • 0 helped
    Session 1

    I’ve been diagnosed with PTSD, anxiety, and major depression/dysthymia. It’s a horrible way to live and I don’t get much sleep. It makes me agitated to get zero sleep, but I just can’t sleep. I’m on meds to help me stay awake since I’m always so tired, meds to help me sleep and stay asleep, and heavy meds for my PTSD, anxiety, and major depression/dysthymia. I’m in the USA, I live alone with my emotional support dog, zero friends, just work and home. I really hope this program can be of some help and that I make some friends I can reach out too.

  • Sleepio Member

    • 2 comments
    • 0 helped
    Session 1

    @CarpeBlissDorm

    You aren’t alone. I feel your pain. Please stay in contact.

  • Sleepio Member

    • 1 comments
    • 0 helped
    Session 5

    Hi, just checking if this forum is still active before I type a lot. Can anyone say hi? :)
    Thanks!

  • Sleepio Member

    • 453 comments
    • 182 helped
    in reply to Sleepio Member
    Graduate

    Hi Clau dita,
    As you can see no one has used this particular discussion page for almost a year. If you leave a message on your profile page by clicking your name, the message will appear on the rolling banner on the Community Page – where more Sleepios will see it and may be able to answer any questions you have.
    If you click on my name – you get taken to my page ;)
    Welcome to Sleepio and I wish you all the best on your Sleepio journey,
    Kurly ;)

  • Sleepio Member

    • 2 comments
    • 0 helped
    Session 1

    I know this is no longer active but hoping someone will see this and have a similar experience –

    I am diagnosed with type 2 bipolar disorder. For me in particular, I do not have manic phases where I “don’t need” sleep per se, so much as I have high levels of anxiety and a lot of motivation to start projects, make impulsive choices, etc. Also in my manic phases, one big thing that affects my sleep is the fact that there is nothing I crave so much as sugar and caffeine. I crave coffee, soda, ANYTHING that will help fuel my manic phase and the things it encourages me to do. On the other side of the spectrum, in my depressive episodes, I can sleep as long as 14 hours, uninterrupted, and still be tired when I wake up. And when I do wake up, I have absolutely no motivation to do anything, except go back to bed.
    As you can imagine, these cycles have greatly affected both my education (I am a college student) and employment. I was recently denied a promotion due to being late an excessive amount of times from being unable to wake up on time for work. Despite my store manager assuring me that they would not fire me for being late in association with my illness, I am very close to experiencing just that. This of course makes me feel even less in control of my life and acts as fuel for my illness, and if Sleepio can’t help (in conjunction to finally being diagnosed and medicated!) I don’t know what will.

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