Does Restless Leg Syndrome keep you up during the night?

Jumping, itchy & uncomfortable legs can be a real problem – I'd love to hear from anyone who's experienced this

Posted 10 Jan 2012 at 5:52 PM
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  • Sleepio Member

    • 22 comments
    • 9 helped
    in reply to Sleepio Member
    Graduate

    Thanks, Megwich! I too gave up caffeine, alcohol, etc and have added hard exercise every day. Been working on sleep for a long time. Finally got a consult with a sleep expert – she said, “You are doing all the right things,” and suggested RLS. I am on medication for the RLS and have noticed a decrease in evening wiggles! But still not sleeping great. It will be a long process. I'm ready. Have done some sleep restriction on my own…I know it's pretty miserable. Will have 'week 3” off work, so that will make it a little easier, psychologically! Thanks for chatting. BLG

  • Sleepio Member

    • 35 comments
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    in reply to Sleepio Member
    Graduate

    I've suffered from foot pain for many years which I put down to a car accident. I find I'm constantly twitching my toes because of the pain, and my lower legs ache a lot in bed. I'm now wondering if this is RLS – I certainly find it very difficult to keep my legs still in bed once the aching has started? I eat a very healthy diet – am on gluten free for coeliac, organic veg, take magnesium and iron…...

  • Sleepio Member

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    in reply to Sleepio Member
    Graduate

    It could be RLS sunnynorth, but it could also be referred pain from the lower spine which causes pain in the leg and foot.

    Ve

  • Sleepio Member

    • 1 comments
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    Graduate

    Had RLS for a number of years when I was younger,up till I was 31 and got pregnant and then started taking iron tablets, and it got better whether extra iron worked, but haven't suffered since.

  • Sleepio Member

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    Session 5

    I have recently developed RLS in the past 5 years or so. I tried a lot of different solutions with no success until the birth of my last daughter. The doctor asked me a bunch of questions and wanted to know what she could do to help. I told her I needed to get sleep and I thought that would help (My daughter was born with several issues that immediately set me over the edge mentally). I told her I thought I had RLS and she told me to take Magnesium with a combination of calcium and potassium. (She told me that from her own personal experience not necessarily from a professional standpoint.) I do that now and I certainly notice when I forget to as it starts up again after missing a few nights. RLS flares up more in pregnancy for me (now expecting our unexpected third) but after taking that regiment for a few years I notice it isn't nearly as bad as it once was.
    Good luck everyone finding relief.

  • Sleepio Member

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    Graduate

    I've noticed over the last few weeks that I'm having more and more of a problem getting to sleep when I get into bed (though I'll be honest – I've been increasingly lax about the quarter hour rule as well)

    I've found that listening to the relaxation technique pretty essential for my body to relax – actually doing wonders for my restless leg syndrome. But over the last few weeks (maybe longer) I've noticed that it seems to wake me up mentally.

    I have my wind down routine in place and will be fighting off sleep before I go to bed. Getting into bed I feel ready to sleep – going through the relaxation technique – I wake up. My body is heavy and sleepy but now my brain won't shut down.

    I'm loathe to not do the relaxation technique because it seems to stop the restless leg syndrome from kicking in and that destroys my sleep all night (even when I do get to sleep I keep waking myself up moving around all the time)

    Anyone experienced this or have any advice?

  • Sleepio Member

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    Session 3

    I suffered for many years with restless legs. Had difficulty driving, sleeping, working, sitting , standing, or just living. The Dr tried a variety of meds and finally settled on mirapex which is my wonder drug. Without it I could not function.

  • Sleepio Member

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    Session 3

    Sleepyeve – My sleep routine is similar to yours – when I do the relaxation technique I find my brain ''wakes up” even tho I feel tired & yawning when settling down to sleep (hopefully!). I have RLS & Periodic Limb Movement. It's the PLM that starts – electric shocks down the right side of my body and seem to have no control over it. Unable to take any RLS meds because of side effects. Sorry – no tips on how to proceed. Any suggestions welcome!

  • Sleepio Member

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    Session 1

    Being on my feet or sitting long periods cause my legs to get tired and they need to be stretcehed..almost to the point that I want to panic because I cannot get them to relax. Then when I get in bed and get them warm they start to calm down. I can also stretch them better there and my toes.

  • Sleepio Member

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    in reply to Sleepio Member
    Session 4

    I use a weighted blanket and it works great!

  • Sleepio Member

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    in reply to Sleepio Member
    Graduate

    I, too, have suffered with RLS since I was 12 and I’m now 76. I take mirapex generic at 8:30 pm and use “hot socks” at night.
    “Hot socks” are made from long white men’s athletic socks. I fill them full with brown rice, leaving enough room to tie them off. I pop 2 in microwave for 2 1/2 minutes and then put them under my thigh. Some nights that really works for my RLS, other nights, nothing works.
    I also take an iron tablet a day.
    I’ve discovered trigger foods and try to omit them in my diet. SUGAR is the worst one. Alcohol too late in the evening can be a problem as well.
    I’m so excited to find other people with RLS.

  • Sleepio Member

    • 1 comments
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    Session 2

    I've had restless legs for years. I used to call them twitchy feet – in fact my whole family experience it from time to time, but I seem to get it the most.

    Usually occurs when I am really tired and starting to relax (just when you want to it to kick in), at the cusp of falling asleep, on airplane flights etc. It also seems to be when they get too hot. I can't keep them still – it's painfully unbearable when I try.

    Getting up an walking around helps. But the best thing i know that gets it away quickly is running my feet under Icy cold water. It's not always possible – but if i'm at home and twitchy feet start, i'll immediately get up, go to the bathroom, run the water cold and then stick my feet under. It takes my breathe away – but i keep them under there for a minute of so until I've got used to the temperature. I do both feet. Dry them off and then get back into bed. 90% of the time it works. My feet slowly warm up in bed but twitchy feet are gone.

    Anyway – i hope that helps… couldn't see that as a suggestion in the first 20 comments i read through.

  • Sleepio Member

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    Session 2

    I suffer with restless legs all my life my legs sometimes jump but now they ache from top,to bottom expecally if I've been on my feet all day keep they keep me awake at night some nights I could climb the wall with them they that bad I take zapain and gabapemtine which don't always work doctors keep upping the dose but still doesn't help some day I have to take more than substribed as it get really bad have tried every to try and get rid of the jumpy pain even goes as far as my daughter standing on my calves to to stop it

  • Sleepio Member

    • 3 comments
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    Graduate

    I had a lot of trouble with restless legs over a year ago and after blood tests was recommended to take an iron supplement although my diet is very good. This got rid of the restless legs but I am now on Mirtazpine for depression and the restless legs have come back despite still taking the iron.

    As an experiment I skipped one dose of Mirtazapine and had no restless legs that night.

    I teach several line dance classes every week so I get plenty of exercise. Stretching exercises don't work. walking around, lying with my legs up vertical against a wall doesn't work. I already don't have caffeine after 6pm and no alcohol whilst on these drugs.

    The only thing that does work is an orgasm. I even bought my first vibrator to make this easier but it had no effect on me, deeply unerotic!

    The Mirtazapine is definitely helping with my low mood – I can make basic decisions again and feel more positive. the Sleepio CBT elements have also helped but the restless legs are so annoying.

    It feels as if my legs from my knees to my ankles are filled with fizzy water.

  • Sleepio Member

    • 3 comments
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    in reply to Sleepio Member
    Graduate

    My mother had restless legs and used to walk with bare feet on a cold tiled floor. Unfortunately we don't have any cold floors in our house. I may try the icy water, thanks.

  • Sleepio Member

    • 3 comments
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    Graduate

    I tried soaking my feet in bowl of very cold water when the restless legs started last night. This did help and I got to sleep with no difficulty. Will try again as restless legs are likely on my medication.

  • Sleepio Member

    • 1 comments
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    Graduate

    I was recommended Magnesium Tablets for my RLS and have found that I do get some relief but not entirely. I purchased online from Zipvit.

  • Sleepio Member

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    Graduate

    Anyone taking any medicines and feeling that the RLS gets worse? Mind that there´s some ingredients making it worse

  • Sleepio Member

    • 1 comments
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    in reply to Sleepio Member
    Session 1

    It drives my daughter mad, i fidget all the time. My husband says that sometimes the sofa bounces as i bounce my legs up and down, or the bed shakes because I move around and can not get comfortable. I have to have something between my legs as i can't stand them touching each other 9r i have to put padding like the quilt under my ankles

  • Sleepio Member

    • 2 comments
    • 0 helped
    Graduate

    I have had restless legs at night and sometimes during the evening (if sitting in a lecture), for years but thankfully not all the time. I am convinced it is related to what is going on in my guts and if I can pass wind or better still a motion, it goes away. I take a soluble fibre food supplement called Bimuno and this seems to work well. Taking probiotic supplements has also worked well in the past, although I stopped them because I thought they were making my motions too loose. I do suffer from IBS as well, especially if I get emotionally upset, and I have fibromyalgia for which i take pregabalin.

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